OffScrip Media is proud to announce The #BCSM Podcast, our first narrative documentary series about the birth of #BCSM, the Breast Cancer Social Media Community on Twitter.
Alicia Staley, Jody Schoger, and I first met in Phoenix, AZ, in 2010 at a young adult cancer “blogger summit” (remember those?) I…
You’ve heard me for years neurotically shouting into the clouds (Abe Simpson-style) about how the glamorous and enticing prospect of starting a nonprofit is riddled with unpredictable and unforeseen pitfalls and insanity.
In fact, I’ve talked many of you off the ledge but never TRULY got into the nitty-gritty writ…
You can take the guy out of advocacy but you cant take the advocacy out of the guy. Please join me in sharing in our collective success in making THE PATIENT the single most important variable in all of healthcare.
It sounds strange that this even has to be a…
For the first time in my career, I have purposefully withdrawn myself as an invited speaker for a major health conference where I was billed as a patient advocate leader.
Part principle. Part protest.
After committing significant time and resources over the past several months to promote this event…
“Simplicity” was the first original song I composed after a seven-day stint in the hospital following brain surgery on January 10th, 1996. That week represented longest I’d ever gone without playing since lessons began in 1986 when I was in 6th grade.
Mind you; my left hand had lost all…
I had the chance to take a different track at last week’s The Atlantic LIVE #CancerStories event in Chicago. They had asked me to consider “#WeThePatients” as a theme.
To me, this is best represented by how the shared, collective wisdom embedded within our advocacy communities has genuinely changed our engagement with a severely flawed healthcare system.
More and more, the benefits of this kind of tribalism have significantly improved how we information-seek and make shared, objective decisions when confronted with what I am now referring to the consumer oncology marketplace.
More colloquially, I’m talking about when you have to start shopping in “the cancer store” and buy things you never wanted to purchase like surgery and chemo. Then, you hope your insurer covers the items in your cart with a Groupon.
Have a watch and let me know what you think.
Try the veal.
WATCH → https://youtu.be/1BYQPB-qHH4
So long ASCO and thanks for all the fish!
This year was indeed very different, not just because of the #NotTheCEO obviousness, but due largely in part to the perspective this massive event now has for me.
True, there were no 6:30am partnership strategy workshops, no exhaustive taxi-pinball to dozens…